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Our tools

Protocol for patients

Here you will find written documents to give to your patients
(how to properly collect 24-hour urine samples, dietary guidelines, etc.)

Discover the documents

Request an Omnidoc opinion

You can request an Omnidoc opinion for your patients from:
Dr Lucile Figueres (nephrology, hypoparathyroidism)
Endocrinology Department, Nantes University Hospital

For urgent opinions, please contact the relevant departments directly.

Go to Omnidoc

Request for an RCP opinion

Are you seeking an opinion for a complex phosphocalcic or renal condition?

Below you will find the national and regional multidisciplinary team meetings (Réunions de Concertation Pluridisciplinaire).

RCP list

Referring a patient for consultation

You can refer a patient for (tele)consultation in nephrology through the Nantes University Hospital website. The patient must have their latest biological test results and a referral letter.
For urgent consultations, please contact the service directly.

Ask for a consultation

Media library

 

Find the National Diagnostic and Care Protocols (PNDS) related to phosphocalcic and renal pathologies, as well as videos from events organised by the CALiPSO Centre.

Go to the Media Library

Events

 

We organise events for patients but also for healthcare professionals.

Our Events

Offer e-TPE to a patient

VousYou can offer therapeutic patient education to your hypoparathyroid patients living in France through the Nantes University Hospital e-TPE programme delivered via videoconference.

Find all the information about the programme and registration below:

Learn more

« Tu m’prêtes ton spé »

Are you an expert in a rare disease and wish to share your expertise with another centre?

Do you see several patients with the same condition and want to deepen your knwoledge?

Get in touch with us!

Learn more

Protocoles and calculating tools

Tools for patients

You will find here, organised by condition, various documents you can provide to patients to help them carry out and understand their tests.

Content for all conditions managed by the CALiPSO Centre
U24 sample

Protocol to send to patients on how to carry out their U24 sample test.

Measurement of calcium intake

Link to the Fardelonne questionnaire

Content for patients with hypoparathyroidism
24-hour urine collection

Protocol for patients with hypoparathyroidism to correctly perform the 24-hour urine collection.

24-hour urine analysis interpretation

Interpretation guide for 24-hour urine test results, intended for patients with hypoparathyroidism.

Blood test interpretation

Understanding blood test results for patients with hypoparathyroidism

Complications and follow-up

Description of the various complications of hypoparathyroidism and guidance on monitoring and managing patients with hypoparathyroidism.

Oral calcium preparations

Description of the different forms of oral calcium available at community pharmacies.

Description of Hypoparathyroidism

Detailed Overview of Biological Targets and Optimal Management

Content for patients with kidney stones
24-hour urine collection

Protocol for patients with kidney stones to properly perform the 24-hour urine collection.

24-hour urine interpretation

Guide to understanding the results of 24-hour urine analysis for patients with kidney stones.

Type 1 Calcium Oxalate (Whewellite)

Risk Factors and Recommended Management

Type 2 Calcium Oxalate (Weddellite)

Risk Factors and Recommended Management

Uric acid measurement

Risk Factors and Recommended Management

How to stay hydrated?

Understanding the purpose of hydration to prevent kidney stones

For Healthcare Professionals

Here are some useful tools for healthcare professionals, including spreadsheets to help assess phosphate reabsorption and investigate magnesium levels.

Biological targets in hypoparathyroidism

How to interpret blood test results in hypoparathyroidism?

TmPI/GFR

Assessment of the phosphate reabsorption threshold in cases of hypophosphataemia

Investigation of hypomagnesemia

Spreadsheet tool to explore the cause of hypomagnesemia (renal versus extrarenal)

Hypocalcaemia protocol, OSCAR Disease network

(coming soon)

Opinion on file review

You can request an opinion on a file for both paediatric and adult nephrology. Watch the explanatory video if you are not familiar with the platform.

You can request a case review during a multidisciplinary consultation meeting (RCP) through the OSCAR (phosphocalcic) or ORKiD (nephrogenetic) Rare Disease Network.

RCP ORKiD RCP OSCAR RCP SFNDT (nephrology)

The Calcium and Phosphate Rare Disease Reference Centre at Nantes University Hospital also organises regional multidisciplinary consultation meetings (RCPs):

Kidney stone RCP every two months:
Specialties involved: nephrology, adult and paediatric urology, radiology

Monthly Calcium RCP (other phosphocalcic disorders):
Specialties involved: nephrology, endocrinology, endocrine surgery, rheumatology.

To attend or participate, simply contact the reference centre by clicking on the following link:

Contact us

Referring a patient for consultation

If you want to refer an adult patient to nephrology at Nantes University Hospital, they can book an appointment by contacting the relevant department directly or by completing the appointment form available on the Nantes University Hospital website.

You can refer an adult patient for a nephrology consultation through the Nantes University Hospital website. The patient must have their latest biological test results and a referral letter.

For phosphocalcic disorders, teleconsultations are often available. Please indicate if this option is preferred when making the referral.

For urgent consultations, contact the department directly.

Contact the nephrology department Request an appointment online

If the patient is a child, please request the first appointment via the OMNIDOC platform. Here is a tutorial to assist you:

Go to Omnidoc Omnidoc paediatrics tutorial

Media Library

Find some existing National Diagnostic and Care Protocols (PNDS) for rare diseases managed by the CALiPSO Centre here.

Aditional PNDS are available on the OSCAR and ORKID Rare Disease Network websites.

PNDS

Hyperoxaluria

PNDS

Kidney stones in children

PNDS

Cystinuria

PNDS

Gitelman syndrome

PNDS

Rare vitamin D-dependant rickets

PNDS

Hypophosphatasia

PNDS

Hypoparathyroidism

PNDS

HNF1 beta

PNDS

Infantile idiopathic hypercalcaemia

PNDS

Cystinose

PNDS

Osteogenesis imperfecta

PNDS

Hypophosphataemia with elevated FGF23

PNDS iPPSD

(pseudo-hypoparathyroidism)

PNDS

Bartter syndrome

Offer e-TPE to a patient

Therapeutic Patient Education (TPE) is a personalised support process designed to help patients better understand their condition, manage their treatment, and adopt health-promoting behaviours. At Nantes University Hospital, patients can participate in the TPE programme for hypoparathyroidism. This programme is based on active exchanges via videoconference between patients, the healthcare team, and patient experts from the Hypoparathyroidism France association, aiming to develop self-management skills and improve quality of life. TPE includes activities such as providing information about the condition, managing symptoms, adjusting treatments, and preventing complications. This approach empowers patients to take an active role in their own health.

Therapeutic Patient Education for Patients with Hypoparathyroidism

« Tu m’prêtes ton spé »

Finding specialists for every rare disease is not easy everywhere!

To improve care for patients with rare diseases, our project « Tu m’prêtes ton spé? » allows an expert doctor to visit a centre, share their expertise, and train the local team.

This involves a day of joint consultations between the local referring physician (regardless of the type of healthcare facility) and the visiting expert.

The expert will also deliver an on-site lecture to train healthcare professionals in the hosting centre and surrounding areas. Through this project, we also aim to connect patients with patient associations to help reduce isolation.

The hosting centre incurs no costs, thanks to sponsorship from the Groupama Foundation for Health and Groupama Loire Bretagne. Feel free to contact us for more information about the project, whether as a hosting team or an expert practitioner.

Contact us