Tubulopathies Day 2025
18 January 2025
This day is designed for people living with a tubulopathy (including Dent syndrome, Gitelman, Bartter, Fanconi, nephrogenic diabetes insipidus, phosphate diabetes, cystinosis, tubular acidosis, and other tubulopathies), as well as their families and close ones.
Programme :
9:15AM-10AM: Participant registration and welcome
9:30AM-10:15AM: Opening theatre performance, Cie en Carton
10:30AM-4:30PM: Theatre workshop for children and teenagers with the Cie en Carton
10:15AM-12:30: Lectures
What are tubulopathies? How will my kidneys fare? – Dr Lucile FIGUERES – Nephrologist
Bones & Teeth – Dr Isabelle Hyon – Dental Surgeon & Dr Lucile FIGUERES – Nephrologist
Social support – Bleuenn Monleon & Maëlle Audéon – Social Workers
Lunch
2PM-2:30PM: Patient association speak
2:30PM-4:30PM: Workshops
Family Dynamics
Chronic Fatigue
Nutrition
4:30PM-5PM: Performance of the children and teenagers’ theatre play
5PM-5:15PM: Lecture
Perspectives & Updates – Dr Gwenaelle Roussey – Paediatric Nephrologist
5:15PM-6PM: Closing theatre performance, Cie en Carton
Missed the event? Watch the videos on our YouTube channel @centrecalipso
This day is organised by two Nantes centres:
The SORARE Rare Renal Disease Reference Centre of the ORKiD Network & the Calcium & Phosphate Rare Disease Reference Centre of the OSCAR Network
Review past events from the 2025 Tubulopathies Day organised by the CRMR SORARE and Calcium & Phosphate (CaP).
Venue:
Eup Tou You
Asturia Bâtiment C
4 Rue Edith Piaf
44800 – Saint Herblain
