
1st Hypoparathyroidism Awareness Day
1st June 2023
Programme:
9:30AM-10AM: Participant registration
10AM-12PM: Lectures
Post-operative hypoparathyroidism: How to reduce the risk in 2023? – Prof. Eric Mirallié & Dr Samuel Frey – Endocrine surgeons
Medical mangement of hypoparathyroidism: What are the recommendations? – Dr Maëlle Le Bras – Endocrinologist
Once upon a time, my hypopara story – Laurence – Patient
Living with an invisible disability – Béatrice Blouet – Author, Speaker, and Chronic Patient
Lunch
2:30PM-3:30PM: Panel discussion
The Rare Disease Reference Centre & HypoparaFrance answer your questions – Dr Lucile Figueres – Nephrologist; Anouk Sorin – ORKiD Therapeutic Patient Education Coordinator; Caroline Guillotin & Lucie Rajaobelina – Dietitians; Delphine Bessonies – HypoparaFrance Association
3:30PM-4PM: Lectures
Updates in hypoparathyroidism: clinical trials, e-TPE… -Dr Lucile Figueres – Nephrologist & Anouk Sorin – ORKiD Therapeutic Patient Education Coordinator
Watch the event videos on our YouTube channel @centrecalipso
Event organised by the Rare Disease Reference Centre for Calcium & Phosphate Disorders, Nantes, OSCAR Network
Relive the highlights and images from the 2nd Hypoparathyroidism Awareness Day
Venue:
Hôtel Quintessia
24 Chemin des Marais du Cens
44700 Orvault