Skip to main content

1st Hypoparathyroidism Awareness Day

Famille et patients

1st Hypoparathyroidism Awareness Day

1st June 2023

Programme:

9:30AM-10AM: Participant registration

10AM-12PM: Lectures
Post-operative hypoparathyroidism: How to reduce the risk in 2023?Prof. Eric Mirallié & Dr Samuel Frey – Endocrine surgeons
Medical mangement of hypoparathyroidism: What are the recommendations? Dr Maëlle Le Bras – Endocrinologist
Once upon a time, my hypopara story Laurence – Patient
Living with an invisible disability Béatrice Blouet – Author, Speaker, and Chronic Patient

Lunch

2:30PM-3:30PM: Panel discussion
The Rare Disease Reference Centre & HypoparaFrance answer your questions – Dr Lucile Figueres – Nephrologist; Anouk Sorin – ORKiD Therapeutic Patient Education Coordinator; Caroline Guillotin & Lucie Rajaobelina – Dietitians; Delphine Bessonies – HypoparaFrance Association

3:30PM-4PM: Lectures
Updates in hypoparathyroidism: clinical trials, e-TPE… -Dr Lucile Figueres – Nephrologist & Anouk Sorin – ORKiD Therapeutic Patient Education Coordinator

Watch the event videos on our YouTube channel @centrecalipso

Event organised by the Rare Disease Reference Centre for Calcium & Phosphate Disorders, Nantes, OSCAR Network

Relive the highlights and images from the 2nd Hypoparathyroidism Awareness Day

Venue:
Hôtel Quintessia
24 Chemin des Marais du Cens
44700 Orvault